Friday, 18 April 2014

530 Quilts and counting

Send me a messageAs of May 2011 I have make over 437 quilts for children with SMA.   Every quilt I make is special to me because, like my Granddaughter Nora, I understand a lot of what you are going through.  If you have a quilt that I've made, please take a second and send me a comment good or bad.  I'd really like to hear from you.

Send me a message here:  Montana Grandma Quilt Feedback

Here is an article by Families of Spinal Muscular Atrophy about the quilts

Everyone at Families of SMA would like to send a very heartfelt thank you to Nora Gooden’s grandmother, Cindy (aka Montana Grandma) of Montana. Cindy has been so incredible by providing us with her beautifully hand crafted quilts, which are sent in the Type I and Type II Care Packages. When Nora was diagnosed in July of 2009 at the age of 6 months, Cindy used her 37 years of quilting experience to help relieve stress and as a way to help other new families. Newly diagnosed families who receive these amazing hand crafted quilts love the fun pattern and uniqueness that each individual quilt provides. Countless families have commented on how thankful they were to receive one of these quilts, knowing how much time, love and tears were put into each and every one. We cannot thank Cindy enough for her creative approach to “sending a hug” to every newly diagnosed family. It is families like Cindy’s that show us why this organization is called Families of SMA!

Montana Grandma

 

This is my granddaughter, Nora.  She has type-1 SMA and just turned two years old.  When Nora was diagnosed I struggled to find a way to express my sorrow and also support for, not only my granddaughter and Son, but for all the families who are forced to endure this disease.  I began making odds and ends that my Son's family could use to help Nora:  blankets, positioning pillows, weighted pillows for stretching.  Then I was contacted by Families of SMA to see what I could do for them as well.  I started making Quilts full-time sometime in early 2010 and have nearly completed 365 quilts since.

Does your child have SMA and haven't received a quilt?

Join FSMAHave you received your "welcome' gifts from Families of Spinal Muscular Atrophy (FSMA)?  If you haven't registered with FSMA or the SMA patient registry please take the time to do so now.  There are huge benefits from being part of the registry, including but not limited to:  Clinical Trial selection.  FSMA is also a great place to register with since they can provide equipment and so many resources for your affected child and your family.

Spotlight on SMA. Goodentree.com. My Granddaughter Nora's website

Goodentree.com - SMA Type 1 NoraPlease visit the page of my granddaughter who has Type-1 SMA.  It was Nora that inspired me to start making SMA quilts and transformed my quilt hobby into my vocation.  Goodentree is updated usually 2-3 times a week and they have a lot of great information and SMA tips and tricks they have learned.  Nora will be turning two-years-old in January