Here is an article by Families of Spinal Muscular Atrophy about the quilts
Everyone at Families of SMA would like to send a very heartfelt thank you to Nora Gooden’s grandmother, Cindy (aka Montana Grandma) of Montana. Cindy has been so incredible by providing us with her beautifully hand crafted quilts, which are sent in the Type I and Type II Care Packages. When Nora was diagnosed in July of 2009 at the age of 6 months, Cindy used her 37 years of quilting experience to help relieve stress and as a way to help other new families. Newly diagnosed families who receive these amazing hand crafted quilts love the fun pattern and uniqueness that each individual quilt provides. Countless families have commented on how thankful they were to receive one of these quilts, knowing how much time, love and tears were put into each and every one. We cannot thank Cindy enough for her creative approach to “sending a hug” to every newly diagnosed family. It is families like Cindy’s that show us why this organization is called Families of SMA!
This is my granddaughter, Nora. She has type-1 SMA and just turned two years old. When Nora was diagnosed I struggled to find a way to express my sorrow and also support for, not only my granddaughter and Son, but for all the families who are forced to endure this disease. I began making odds and ends that my Son's family could use to help Nora: blankets, positioning pillows, weighted pillows for stretching. Then I was contacted by Families of SMA to see what I could do for them as well. I started making Quilts full-time sometime in early 2010 and have nearly completed 365 quilts since.